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TikTokleukodystrophylife
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TikTokpoppy_and_kaylee
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Quick answer- her body went from small spots of pneumonia to only one of her lungs having maybe 25% function. Her seizures were so frequent and almost impossible to control. Leukodystrophys cause the body to not function like a healthy body. Her muscles, organs, and brain couldn’t recover or heal. #leukodystrophy #leukodystrophyawareness #tbcd #tbcdawareness
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This one was hard….thank you for all your patience and support 🫶 #poppysstory #tbcd #leukodystrophy #childloss
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#Leukodystrophy can make it hard to swallow thin liquids, but Max has to take #Keppra every day. Here's how we make it easier! #dysphagia #TBCD #CureTBCD #tbcdawareness #leukodystrophyawareness #slp #disability #toddlermedicinehack #toddlermedicine #medicalmom #disabilityparenting #respectfuldisabilityparenting
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TikTokpoppy_and_kaylee
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